,When I think about that little newborn baby—the first one I birthed, the first true obsession of my life—I recall the haze of sleepless nights and the excitement of new life. Babies are so raw and new; they wholly need you. You carry them and everything they will one day become. … | Continue reading
My son, I wonder if you will always reach for my hand when we are walking. I wonder if you will always be precious and innocent. I wonder if you will always gasp at birds and at squirrels. I wonder if you will always point to airplanes. And wave to strangers. And bark when puppie … | Continue reading
It’s 64 degrees out today. In April. In Minnesota. The pool is set at 80 degrees. We opened it this weekend. Our second son Sawyer has had multiple friends over to play. They jump. They shoot hoops. They talk baseball and hockey and Fortnite and girls. Our third son Harbor doesn’ … | Continue reading
There were tantrums, There were fears. There were meltdowns. There were tears. There were hard times We just had to get through, But on the other side—smiles Just look at you! The blessing of seeing Grandparents, Traveling and out of routine. Can be hard at times for you, But it’ … | Continue reading
Two years ago, before we understood all that we do now, we were making our way through a very difficult time with our daughter. She was self-harming, and as it is for all families supporting children who have this disposition, we were frantic to help. She was just plain as day, t … | Continue reading
I never thought I would have four kids. I’m not sure if I’ve ever shared that before. I thought two, maybe three. But four? It still surprises me sometimes. Four is loud. Four is chaotic. Four is wonderful. Four is fulfilling. A few days ago on Easter I woke up first. Which most … | Continue reading
I took two of my kids on a walk this morning. It’s our first real spring like day in Minnesota. Sawyer rode his bike and I pushed the little one in the stroller. Five minutes in, Sawyer’s bike tire popped. Like dramatically. Like in a cartoon. WHOOOSH the air blew out. His face f … | Continue reading
Autism Spectrum Disorder became a constant companion in our life one April day a five years back. I think back to that day and realize both how naive and how unprepared I was for the journey ahead. There are a lot of things I would go back and tell myself on that day that I sat w … | Continue reading
When you have a child diagnosed with autism, it’s not about you as the parent. At least that’s what we are told. Your sole focus becomes helping your child. Getting them the help they need. Services. Supports. Therapies. Education. And so on. That’s the role of a parent. And that … | Continue reading
When you don’t have a child with a disability, you don’t think too much about it. Until your life is touched by it, you think about it differently; it’s personal. Of course, everyone knows there are individuals with disabilities, but it’s not directly affecting your life. There i … | Continue reading
I could tell you a hundred things this kid has taught me in his thirteen years. More than most adults I know honestly. I had no idea when I was pregnant with my first born that he would end up being the teacher that I needed. Or that a child would turn me into the person I was me … | Continue reading
There comes a day where you realize that admitting autism is hard isn’t a choice you have to make, but rather it’s a moment in time where the struggle of special needs parenting goes from secret to unable to mask it any longer. This switch happens when people start to recognize m … | Continue reading
At the park last night, one of these boys played with boys his own age. He went up the slide and scaled the jungle gym like an acrobat. One of these boys chased after the older boys. They tickled him and he loved the attention. He went down the slide a hundred times and said…’mom … | Continue reading
Have you ever purchased a very challenging jigsaw puzzle just for the sheer joy and feeling of accomplishment you’ll get once you’ve successfully assembled it? The larger the quantity of pieces the better right? As I stare at those 5,000 pieces dumped onto my counter top and begi … | Continue reading
Sometimes, I find myself thinking about her. The one who probably rises at 5 am to do something wild like go for a run or attend hot yoga. Her time management skills are impeccable. A Caesar salad is a treat for her, and she’s diligent about drinking water every day. She excels a … | Continue reading
The thing with growing tiny humans is they are always changing. Learning. Absorbing. Getting bigger. My son Cooper is 13 years old. He wants to ride an Amtrak train more than anything. He wants to have a party with his three friends, Dexter, Peyton, and Landon. He loves going to … | Continue reading
For me, as a mom, this parenting autism life, especially alongside my neurotypical children, has often like a contradiction. A double-edged sword or sorts. A constant contradiction of joy and grief, both coexisting and intertwined. Neither wrong. A few days ago, I walked into a g … | Continue reading
We practice. We practice everything. I remember in the beginning l, after the diagnosis of autism was said out loud, feeling overwhelmed about all of the things my son needed to learn. Things that came seemingly easy for most children. Walking safely, using silverware, speaking, … | Continue reading
Oh vey, if it only were that easy. Has anyone made a comment when you were trying to feed your child and said, “Oh, don’t worry so much. They’ll eat when they’re hungry?” I can relate to this all too well. Growing up, I was obsessed with bologna sandwiches. Nothing else would com … | Continue reading
When we are out in public, my biggest worries are not about how my autistic son will act. Instead I worry about how the world will react. I don’t worry about his mannerisms. Or his uniqueness. Because I know exactly who he is and how he is going to behave. And that he is learning … | Continue reading
I just came from a coffee date with a wonderful mother who has a daughter like my Cooper. The power of the internet brought us together. She wants to change the world like I do. She wants to take away the stigma and the fear and educate like I do too. Over coffee, we talked like … | Continue reading
What do I say to friends and family? The awkwardness of the parent’s thinking: “How are they going to respond, what am I going to say back, etc.” Kind deeds go a long way with someone going through a rough time. Has a friend or family member just received a diagnosis for them or … | Continue reading
My daughter is 15 years old. She is autistic, has sensory processing disorder, and anxiety. She spends much of her day trying to calm both her mind and her body. There are very few things that are able to regulate both of those things simultaneously. A long walk in nature on a su … | Continue reading
I never want to come across as having it all together. Because the honest truth is, I do not. No one is doing it all. And if they claim to, then they are either lying, have a lot of help, or forgot how hard it is raising tiny humans. I don’t share too often the tough parts. I’m a … | Continue reading
A few nights ago, during family movie night, I found my lap wide open. I wasn’t holding a wiggly toddler. I wasn’t grabbing snacks or drinks. I was alone, in a recliner, feet up. Now this may not sound rare to most, but as a mom of four, I often feel like my body is comparable to … | Continue reading
Pictures, pictures, and more pictures. I’ve been taking them since my parents gifted me my first camera on my ninth birthday. This was before smartphones and the frenzy of capturing every moment took hold. I love it. Sometimes, after the exhausting bedtime routine, I lie in bed a … | Continue reading
As parents raising children on the autism spectrum, we’re no strangers to the stereotypes and misconceptions that surround autism. Unfortunately, these stereotypes often support the stigmas and misunderstandings, and even get in the way of our children’s access to the support and … | Continue reading
When my son was diagnosed ten years ago, I knew nothing of the diagnosis. Not a thing. I researched of course. I found Rain Man. And dark grainy videos on YouTube of individuals on the spectrum struggling. I wondered where my son would land. The savant side? The hard to watch sid … | Continue reading
I need your help moms and dads… I need you to teach your kids about kids like mine. The ones in the other classrooms at school. The faces you may not recognize in the yearbook. My son is 13 years old. He’s a 7th grader this year. He also is autistic and technically nonspeaking on … | Continue reading
My son, I want to make a few promises to you. Because we have a lot of stigmas to shatter around autism. And you are just the kid to do it. With a little help from your old mom. I will carry you on my back when you can’t walk yourself. I will hold your hands to my face when you f … | Continue reading
What colours do you see? I cannot put into words what those five words meant to me, but I’m going to try. Hope Fierce Determination Unstoppable My daughter Kya is 13 and on the autism spectrum. She was diagnosed at two and a half. She was nonverbal. When my daughter was diagnosed … | Continue reading
But mama, “What is autism?” My sweet daughter innocently asked me. I let out a long sigh I had been holding in while she asked. And I let out what sounded like a laugh, only because it was a hard question that I truly didn’t have an answer for. “What is autism?” That’s a question … | Continue reading
I wonder if they realize how hard it is to have a child who cannot have a conversation. I wonder if they realize it’s even harder to place that child on a bus to be with people you don’t really know. I wonder if they realize we are counting on them to follow a well-written educat … | Continue reading
I received a lot of questions when I shared that I was getting my nonverbal 13-year-old son a cell phone. To be honest, I questioned myself. But I had a dream laced with hope and determination. Verbally speaking is not possible for my son right now. He shows no desire. We’ve mode … | Continue reading
What I want the world to know about my daughter My daughter is autistic, nonverbal, and has apraxia. She has debilitating anxiety. She has a monkey on her back, and it’s called autism. It confines her ability to enjoy and experience life. It has robbed her of so many things—relat … | Continue reading
Now, as an adult who has navigated many challenges and has established a career as a professional speaker and author, I am privileged to serve as a mentor to many young individuals on the spectrum and others with special needs. Leveraging technology, from Skype to phone calls for … | Continue reading
Today is my son Sawyer’s eleventh birthday. Which is a really big deal. Because according to him he’s basically 16. I am a storyteller. At least I consider myself one. I think our stories are what complete us. And telling stories about Sawyer are my favorite. And I write them dow … | Continue reading
My son, Your birthday is in 8 days. You have been counting down since mid December. You love your birthday. And you love being older. So much so that you are already telling people you are 11 years old. I lovingly correct you every time, reminding you that you are still my 10 yea … | Continue reading
“Why would you bring her?” Those five words sent chills down my spine. My daughter Kya is 13 and on the autism spectrum. Sometimes the simplest of things can be hard for her. And things that most take for granted like waiting, sleep, and language. Last weekend I took Kya to the S … | Continue reading
Every morning I wake up to messages from people on social media. Most are well-meaning. Many are kind. A few are awful. Some are bizarre. And some, tell me how to raise my son. And how I’m doing it wrong. They tell me what I should be doing, how I can do it better, and what I can … | Continue reading
Here we are in the new year, and I’m struggling. It’s an internal struggle, and I’m having a hard time shaking it. The new year is never easy for me, and I think it may be tied to the fact that my dad passed away on New Year’s Day in 1992. I get severe anxiety and sadness every y … | Continue reading
I begin to open one eye. Slowly the other. I cannot process all information flowing at the same time. I have to take it in one color, one voice, and one movement at a time. Once it all starts flowing together in my head, my heart rate slows down. My eyes open, and I unplug my … | Continue reading
We have a unique family. At least I think we do. We have a teen and a tween and a little and a toddler and a super social dad and a tired mom. We have four that like to go and do and one that needs a little more encouragement. We have four that are extremely social and two that p … | Continue reading
Did you know there are some women out their who never whine? Or complain? Or even say it’s hard. I never knew that. I really didn’t. So when I stumbled across a post on Facebook bashing women for talking, or as they said whining, about the hard parts of life, I was shocked. Appar … | Continue reading
This morning, when I came out of my bedroom, far earlier than I would have liked, I knew my son Cooper was waiting on the stairs for me. For one I could hear train whistles and happy music coming from his ipad. We often hear him before we see him. And secondly, lately, he’s been … | Continue reading
"Based on the award-winning HBO documentary, HOW TO DANCE IN OHIO is a heart-filled new musical exploring the need to connect and the courage it takes to step out into the world."The show opens with the seven lead actors excitedly bounding onto the stage welcoming the audience to … | Continue reading
A few nights ago, my husband and I found ourselves driving around a picturesque town for 20 minutes or so…alone. We had no kids with us. There was no loud noise or fighting, endless questions, or voices from an iPad. It was just us, driving around looking at holiday lights, Chris … | Continue reading
When you have a child who communicates differently than most, you learn to listen with more than your ears. You learn to communicate with a look, a touch, a gesture. Words became less important. You read your child’s needs just by looking at their eyes. A simple look is all you n … | Continue reading